“Enlarge the place of your tent,
And let them stretch out the curtains of your dwellings;
Do not spare;
Lengthen your cords,
And strengthen your stakes…”
“Enlarge the place of your tent,
And let them stretch out the curtains of your dwellings;
Do not spare;
Lengthen your cords,
And strengthen your stakes…”
As we hop off the vehicle and walk into the school, twenty-four year old Ajmeer runs up to the door, and pointing to the van mumbles something I can’t quite understand. He has such a broad smile and dance in his eyes that I can’t help but smile back and ask again what he said. And still I can’t understand what he says.
Ajmeen is the newest member of the “boys” at the Colombo Centre for Special Education (CCSE). He has been diagnosed with meningitis, is hyperactive and suffers from seizures from a very young age, but none of that prevents him from being outgoing and friendly, keeping up a running commentary as we tour his school. CCSE is dedicated to providing a safe and positive environment for men with autism, Down’s Syndrome, cerebral palsy and other mental conditions that affect learning. “Most of them are very sheltered in their homes” explains CEO Charika Muttiah, “and this is one place their parents and caretakers are sure they will be loved and not abused”.
Charika’s designation is fancy, but the work she does is far from that. “I have a very small staff here and I tax them to the maximum” she tells me even as she sits down on a piano-stool to look through a sheaf of papers and put her signature on them. They have hit the bottom of their funds. “We are not secure by any means” is the confession Charika makes to me. CCSE is running on the interest off a few investments they’ve made, she explains, and that is stretched thin every month. Most of the parents and legal guardians of the students pay a fee of “whatever they can”, but the CCSE’s main source of funding is private donations, and these are no more all that forthcoming.
Each year, CCSE engages in a number of fundraisers, the highlight of which is the annual sale of work. Through these events they acquire funds to cover their costs and make a little profit, but according to Charika, nothing substantial that can keep the centre running smoothly. “We are such a small group” she tells me almost regretfully, “even to engage in something like a walk is difficult”. It is not that they lack the spirit, but the practical tools to put ideas to action. Many of the CCSE’s students are already a burden to their families, their siblings, their legal guardians who care for them, and the CCSE is their only source of hope and relief. But the organization itself is now approaching not-so-solid ground.
“Security” is a word that keeps returning ominously to our conversation, and I am struck by the irony of how secure the students seem in this place. Some talk and laugh as they are taught basic math, others silently concentrate on their sewing or craft work. There is an air of peace and contentment that pervades the schoolroom. It is unbelievably calming and refreshing.
The school is in fact an airy house at 80/7 on Layards Road, the main hall and verandah of which have been equipped for teaching math, sewing, art, carpentry, woodwork and other simple skills. The hype these days at CCSE is the Art room. One suspects that this is most often the case, but these days more than ever because ‘Expressions 2012’, an exhibition of art and craft by the students at the centre is kicking off at the Lionel Wendt Art Gallery on June 21. The exhibits are set to be revealed at 9:00am by Chief Guest Mrs. Sunethra Bandaranaike at the gallery, which will be open to public until 6:30pm. There are paintings upon paintings in the art room, some done with oil paints, others with acrylic, still more in chalk and pastel, and even a few in mixed media. But the best thing about these paintings is the obvious strength of genuine character that speaks through their forms and colours.
the art room. pic by M. A. Pushpa Kumara.
This is no surprise considering the artists themselves are a lively and interesting bunch. The 28 “boys” as the gentlemen of the institution are called, are between the ages of twenty and sixty-five, and though the CCSE website (www.colombocse.org) reports fifty percent of them lack an understanding of basic instructions, it is impossible not to admire their focus and patience. And even as they are intent on their work, it is impossible not to enjoy their company as they ask simple questions and delight in the most mundane answers. But for many, the true gift of spending time with them is that of pure love and complete forgiveness. “It is amazing” says art teacher Anusha, who has been working at CCSE for roughly a decade now, “you hurt them, they walk the other way and come back the next minute to kiss and hug you”. Her face exudes a brilliance of calm, and the other teachers I meet, Jean, Sister Agatha, Aunty Irene, are all radiant. The love is tangible.
It seems that the beneficiary-benefactor roles are reversed and that it is the teachers and staff that gain from the presence of the students in their lives. Even a brief visit of just over an hour has left me feeling simply content for the rest of the day. Make time for the exhibition on June 21, have a look at the paintings and tonnes of other nifty craft-work and most importantly, meet the artists. Do this not for their sake, but for your own.
Please check out the CCSE website and don’t hesitate to contact them; any form of volunteerism would be welcome, am sure!
His voice is deep and firm, tinged with melancholy and almost at odds with his coarse features and stocky frame. The way his eyes take us in as we step across the threshold, I imagine he must have been a force to reckon with, before he was crippled. Recall Moses Thangarasa.
Close to midnight on 27 March, 2010 the 33-year-old three-wheeler driver found himself hit and then dragged along the railway lines near Meewathura by a night-train. The accident left him with two vertebrae fractured and both legs amputated quite high above the knee. After months of treatment at the Peradeniya Teaching Hospital and therapy at the Center for Handicapped in Kundasale, Moses was finally sent home. But he is hardly comforted.
Moses currently lives in his father’s sister’s small house with her children and grandchildren on a steep incline in Irugalbodiya, off the Mahakande Road. He has crutches and prostheses acquired through the goodwill of his friends and well-wishers, but finds it difficult to use them due to his spine-injury. His existence is confined to the bed beside the living-room window, and the outhouse when his cousin Susantha is home to carry him to the yard. Otherwise he is forced to use a bedpan that his aunt Chandra cleans after him. “She can't even go anywhere” he regrets, “not even to a relatives’ in an emergency. It’s impossible, because of me.”
This is what he hates the most. Moses’ father died when he was only 16, so after O/L at Wimaladharma College in Penideniya, he began working. He was employed as a gardener at the Royal Botanical Gardens in Peradeniya for some time, then at a garment factory and later as a security guard. “There’s no one thing, miss” he tells me with an open smile, “I’ve worked many jobs”. Finally his father’s younger brother Jayantha bought a three-wheeler and leased it to Moses to run on hire. From the age of twenty-plus, this has been Moses’ steady source of income. Having got used to earning close to 25,000 rupees a month and being able to spend on and support others, to now depend on charity for support is incredibly frustrating.
“If I'd always depended on other people it wouldn't have been this difficult” he continues. Far from wallowing in self-pity though, Moses is industriously looking for ways in which he might overcome his handicap and start working again. He would be happy to engage in any work that can be done without the use of his legs, but admits he is most comfortable hiring his taxi, so is looking for ways to acquire a modified three-wheeler so he may return to the stand.
Susantha, who is Chandra’s son, is also a three-wheeler driver. “We all suffer because Moses is not at the stand anymore” he says. The other drivers at the Galaha Junction, where Moses used to park his vehicle, apparently still discuss that drivers from other parts of Peradeniya wouldn’t come with “chandi part” and occupy their lot if Moses was around; “he is not afraid of such people”.
It is probably the fact that Moses was always there to support and defend his friends that made them all come together, pool their resources and help concrete the small gravel road that leads up to Susantha’s house. “Some gave cement, some gave sand, many came and helped with the work” Moses says quietly, humbled.
The quietness and humility must be new. When he speaks there is that inevitable tone of the patient suffering in Moses’ maimed body, but his eyes light up once in a while with a fierceness and boldness that must have been the source of strength to his friends.
“He never had to borrow money from anyone before” Susantha says as he drives us back down the hill to the main road. Now, Moses is completely dependent on Susantha and Chandra for his survival. Susantha himself earns very little with his taxi, and this income is spread thinly between his mother, three siblings and their families as well as Moses. His younger brother is a bus conductor who though hardly employed, brings home about 2,000 rupees on a good day. Susantha himself is at work from 5am to 9pm. “I have no time left even to spend with my baby” he says, speaking of the whiny little 2-year-old girl that was ogling at us as we chatted with Moses, and wailed to be held by the father as he left with us.
“What to do?” he continues, unable to despise the crippled man for the heavy burden. Susantha is firmly convinced that he must provide for Moses because they are his only family left. Moses’ mother, who is employed in keeping house at a university lecturer’s residence, visits sporadically, but “she doesn’t care much, she never has”, he says. He believes she has been psychologically unstable since her husband’s death over fifteen years ago. Moses thus recognizes and appreciates Susantha’s generosity and only yearns to show his gratitude with some return. But the task is nearly impossible with his limited resources and reduced capabilities. His voice dropped and he looked down to merely mumble as I left that this is what he needs me for, to find him some help.
If anyone has advice or is able to help, he would appreciate a call on 777 182 259 or financial assistance could be made available to the People’s Bank S/A 0572-0014-000-9766.
More than two years of complete dependency on others has probably left Moses an altered man. He must have the kind of hindsight many of us are not blessed (or cursed) to acquire. “I have learnt a lot after this accident, miss” he told me, while his tone said they were not all pleasant lessons. If nothing else, he has learnt humility, which is a difficult lesson for anyone to learn, let alone a strong and hefty man in his early thirties. He simply pleads for help.